Lupus Warrior of the Week

4A’s Sisters Lupus Foundation of Lafayette La wish to honor Lora Faison – Feliciano She’s married to a amazing man. Between the both of them they have 5 children, 11 grandchildren and one great grandchild. Lupus introduced itself to her in 2001 19 years ago. It was so hard to understand what was taking place In her body. She remembered from 1979 when she gave birth to her oldest daughter and into the 80’s she stayed sick with the feeling of being tired, unexplained joint pain, weight up and down, urinating blood, sensitivity from the sun, severe skin break outs. It was in her body that Lupus had taking over. 3 years ago Lora Faison was told by a pass doctor that she didn’t have Lupus. She rudely told her that if she had it she would have been dead along time ago. Oh, how upset she was. Lora Faison than went and see a new Rheumatologist he sent here out to get a new ANA with other test. It was in her body being confirmed that she had Lupus. Here’s the thing having Lupus for 19 years and that doctors told her she didn’t have it, she was never put on any medication. She told herself that it was God who protected her from all the small flareups she had gotten. Life turned in a terrible way for her. How? Working in the medical field for 32 years also caring for sick people. Lora Faison worked a 12 hour shift from 7pm to 7am, Only to come home every morning to taking care of her sick mother who she Loved so much. Lora Faison had no outlets but, was dedicated to her mother.. she didn’t go out, but she love sewing thats what she did after making sure her mom was taking care of. Lora Faison began to get very depress, losing weight and not wanting to live because of all that she had went through. Lora Faison and her husband had reunited. They weren’t married but, had been boyfriend and girlfriend when they were in their 20’s. When he came back into her life she recalled looking so bad. Her hair fell out, lost weight, and her face she was so ashamed. This man look at her and told her “He had never stop loving her”. They began to spend time together. Mind you she had been single for 9 years… that’s another story. She had no trust in no one. But through God he help restored her trust and she begin to Love and care more about self. Lora’s mother wasn’t able to attend her wedding because of her illness she was on hospice. But, she made a beautiful bouquet and put her moms picture in it. After the wedding she went back and gave her mother the bouquet and told her you were still with me. Things started to turn for the worst. Mom’s health went down. Lora’s Faison Lupus being to flareup more to the point she was missing days from work. Having signs of a stroke joints to the point where it was so hard to walk or take her clothes off. Her husband to be by her side. From 2018 having had a break from Lupus (in Side My Body) In and out of the hospital. One doctor from the next. But she didn’t let this thing stop her. 2019 her husband and Lora Faison started a non-profit call AGape Rescue Warriors. Where they go out to feed the homeless and help families who are less fortunate. She’s having done much because of her trips back and forth to the hospital. But through God it will be back up and running soon. Lora’s skin looked so bad hair fell out and it still hasn’t grown back. She also got her LLC to do all Natural Organic skin Products. Lora says all of this to say., This is just half of her story and as Lupus comes to attack her. She says it chose her she didn’t choose it, and she continues to move and do because she don’t let it consume or define who she is. As for her husband still fighting for a break we pray that one day we’re able to take that honey moon that they never had. And as for her from now until God takes me she will continue to do for others as she Prayed and ask God to allow to. SHE LOVES EVERYTHING ABOUT LIFE AND THE PEOPLE IN IT. This isn’t half of her story. TO GOD BE THE GLORY PS- show some 💕 4asisterslupus.com

Lupus Warrior of the Week

Dr. Nellie August-PRUDHOMME, DNS, MPH, BSN, RN-BC Lieutenant Colonel, US Army Nurse Corps-(Retired) Clinician, Educator, Consultant, Community Activist Dr. Prudhomme, a retired Army nurse and educator, has nearly 50 years of experience in nursing which includes nursing education and practice with a clinical practice focus in community/public health, psychiatric mental health and staff development. Her teaching experiences in nursing programs includes graduate level (MSN, PhD), Baccalaureate (BSN) and Associates (ASN) levels. Current certifications include Mental Health Generalist (ANCC) and Crisis Prevention Instructor (CPI). Her base of mental health expertise ranges from Administration, management, supervisory, staff and education positions in pediatric, adult, geriatric and substance abuse settings in civilian and military sectors. Research interests include health promotion across the lifespan with diverse vulnerable groups. As the recipient of the Women & Children’s Endowed Professorship, she serves as a pediatric lecturer at South Louisiana Community College (SLCC). Dr. Prudhomme formerly served in the role of Program Chair for a new Associates Nursing program ushering initial ACEN accreditation in 4 years of inception with an initial NCLEX-RN pass rate of 93% and 100%.for subsequent 2 years. In the role of Program Chair, Dr. Prudhomme administratively provided coordination and leadership role in curriculum development and evaluation of ASN program.

Responsibilities included: • Faculty Advisor/sponsor for Student Nurses Association Chapter. • Graduate Faculty Preceptor for MSN graduate student Nursing Education Practicum • Faculty liaison initiate and coordinate clinical affiliation agreements • Lead/Core faculty for theory and clinical coordination of specialty courses (Psychiatric/Mental Health and Maternity/Pediatric Nursing Dr. Prudhomme currently serves on the National Advisory Committee for Substance Abuse and Mental Health Services Administration (SAMHSA) Minority Fellowship Program of the American Nurses Association (ANA) and on the Scholarship committee for National Black Nurses Association. Service, Servitude and Volunteerism exemplify the theme and scope of Dr. Prudhomme’s contribution to society on many levels. Her roles and responsibilities in community service is extensive -Summer softball coach for Northside girls team, after work hours mentoring nursing students in research projects, after work hours intervention to military families, Youth Summer Camp psychosocial training, participation in multiple community health screening, Summer Bible school program teacher, Board Director of SWLAHEC, supporting international health efforts during the 2005 Asian Tsunami, to name a few. Ephesians 2:10 guides her efforts in all aspects of her life-professional and social.. For we are God’s workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them.”

Lupus Warrior of the Week

GM the 4A’s Sisters Lupus Foundation here in Lafayette La would like to honor this week: Charlie Jean Smith aka “Charlie”. Meet Charlie, she lives in SC. She was diagnosed with lupus in March, 2016. At that time, she had a blood clot that went to her spleen (splenic infarct). At the time, the doctors had no idea what was wrong with her…cancer, sickle cell….and the list went on. It was her 5th day into her hospital stay, when the surgeon came in and the word “Lupus” was used. Charlie had no idea exactly what lupus was at the time, but she knew she was scared. Along with the lupus diagnosis, she found out she had a slew of other diseases that go hand in hand with lupus. Charlie was sent home with a ton of follow up doctors, unable to work, and scared. On top of dealing with this new diagnosis and failing health, her (then) husband got on drugs (crack) and stole everything she had, right up underneath her nose. Once she was strong enough, 2018, she had him evicted and filed for a divorce. She’s been on my own since then. She have good days and bad days. She’s thankful for her family and true friends that keep her going. Chatlie have 5 (soon to be 6) beautiful grandchildren, and they are her reason to keep going despite the pain and depression. She’s been turned down for disability 3 times now, so she hired an attorney to help her. In the beginning, she asked God “why”. She no longer ask that, but know He has a plan for her! Stay strong….cry, rest, laugh, love. We’ve got this. PS: Show your 💕!

Lupus Warrior of the Week

4A’s Sisters Lupus Foundation of Lafayette, La would like to honor Bettie Carter this week.

A Lupus survivor for 26 years and advocate for 23 years. Chairperson, Health Coordinator, Event Coordinator, Secretary and PR person for “Living Life” with Lupus Support Group, 501(c)3 organization. Lupus Autoimmune Advocacy 2.0 and Tools for Lupus Autoimmune are on Facebook where she also advocates for Lupus.

A mother of 4 daughters, 10 grand children, 2 great grandson, 1 daughter and 1 aunt with Lupus.

Her story started once she moved from California to Chicago August 1994. Driving a truck with all her kids belongings and pulling her station wagon was no fun. She was very healthy, very active and very fit. The first 3 months she felt like she had the Flu or a bad cold, once her face started swelling and cheeks were red she knew it was something else.

She went to the ER about 10 or 12 times within 5 months with pain and swelling and each time she was given creams and pain meds, which only lasted about 2 or 3 weeks. They never could find out what was wrong.

Bettie was able to be pain free for about 2 months and found a job that lasted 3 weeks. One night she went to use the bathroom and the next thing she woke up in ER. She was out for about 2 or 3 hours and when she woke up it was a nurse checking her blood pressure. Bettie asked her where am I and she said, you passed out and you are in ER. After she finish she asked her can I get a blanket and she said yes. As she was comforting her with the blanket she said: Oh, you will be alright you just have “Lupus”.

Bettie asked her what is that, and she said, you haven’t seen the doctor yet, she said no, she said oh well, he will be in to tell you.

Bettie was blown away because she had never heard of Lupus and was very scared. Let’s make this go straight to the point. She found a great Rheumatologist and he keep her Lupus under control for 3 years then it started affecting her bones.

Bettie had to have surgery every other year for 10 years, 3 total hip replacements, a left shoulder and 4 foot surgeries. Her bones brakes easily so, she have broken 2 or 3 of her toes, oh and she can’t leave out, most all her teeth fell out so she have a full upper and working on the bottom. Now when she found “Living Life” with Lupus Support Group her whole life changed.

They have help her to become the person she is, the speaker she became and the advocate she is. She have been in remission for 11 years and she loves what she do for Lupus.

Her family are huge supporters and her grandkids help her more than her kids. She’s very happy to see the platform they have now because when she was diagnosis she could not find one person who knew what Lupus was and if they did they would say, “Oh my friend died from Lupus”. She’s blessed to still do what God called her to do, make the whole world know about Lupus and hopefully find a cure.

Bettie have participated in many events in the Chicago area and surrounding suburbs by speaking at health fairs, schools, churches, hospitals and fundraisers for Lupus. Her organization has received the Proclamation from the Mayor of Chicago declaring May 10th as Lupus Awareness Day in Chicago for the past 3 years. They are also responsible for lighting one of Chicago tallest building downtown, Blue Cross Blue Shield with the words “END LUPUS”. She traveled to Detroit and Milwaukee to help support other Lupus events and fundraisers for the past 6 years. She participated in several Lupus studies at Northwestern Memorial Hospital under her Rheumatologist in Chicago, Dr. Rosalind Ramsey Goldman. She continues to educate the public about Lupus by being a guest on local TV Talk Shows, The AC Green Show V103, Chicago Inspiration Radio 1390AM with Marcella Jones and Living Life In Midlife Radio in Washington DC with Pia King. She spoke at the IL House of Representatives-
97th General Assembly, Chairperson Willie Davis and went to Washington DC to speak to Congresswoman Robin Kelly about more funding for Lupus research. A volunteer for Lupus walks with The Lupus Foundation of America, Lupus Research Alliance and Lupus Society of IL.

Awards:

“She Women Empowerment Award for Outstanding Leadership and Contributions for the Lupus community from CEO Sandra Epps, Detroit Mi.

Letters of appreciation:

Alpha Kappa Alpha Sorority, Inc.

Zeta Phi Beta Sorority

Eastern Star #151 (past) Worthy Marton Sarah Mayberry

Battlefield for Lupus, Crystal Stotts, Milwaukee, WI

South Shore-Chicago Historical Society

The Gwen Knapp Center for Lupus & Immunology Research

Bettie Carter – Chairperson -PR
Health Coordinator
“Living Life” with Lupus Support Group
bettiebooc@yahoo.com

PS- show your 💕
4asisterslupus.com